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Thursday, November 18, 2004
He's With The Angels Now.
Mood:  sad
Cole Webb passed away last night at the age of 27 months. He had a genetic disease called SMA (Spinal Muscular Atrophy) Type I. Ninety percent of children with SMA Type I do not survive to the age of two.

Cole could not breastfeed, but his mother Kristin faithfully pumped breast milk for him his entire life. I believe that is partly responsible for Cole surviving as long as he did.

If you are reading this, please consider making a donation for SMA research:

Families of Spinal Muscular Atrophy

I will leave you with a photograph of Cole taken earlier this month. Such a beautiful child. As a dear friend said, he is running and jumping and playing in Heaven.


Posted by Gretchen at 11:42 AM PST
Post Comment | View Comments (1) | Permalink

Thursday, November 18, 2004 - 2:54 PM PST

Name: Lisa (lildaus)

That is an absolutely spectacular picture of Cole and Santa. I don't remember seeing it on his website, but that is the one I would hang forever, if I was his mom.

He was such a special boy. Thank you, Gretchen, for introducing us to him, and for posting that website. I made a donation in Cole's memory....

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